this week's updates

I haven't had a chance to update the blog at all this week...been getting home at 8:30-9:00 every night (work, meetings, going to walmart to refill the kitchen). I haven't even unpacked my suitcase yet. I'm sure Starr's life has been sucky the past week too, but my excuse is that she has mom and dad to help out with her busy life...haha


Here's what I have as far as updates on Matt (thanks to Dad for his text updates, and Starr for her blog):
He is sleeping more at night, eating cereal (this is a big thing because if he is willingly eating anything right now, I am happy) and trying to ease off the pain pills as much as he can. His pain level is more like a range of 1-5 now, with 5 being the worst. Seems like he is more aware of the little things now, which is a good sign. He explained how his head was feeling like it was full of air and fluid. He said that when he pushes on his right side where the incision is, it feels squishy like an air cushion, and when he gets up or moves his head he can feel fluid moving around inside. He also said that his sinuses make kind of a whistle sound when he moves his head around. He got a call from the surgeon's secretary today and she confirmed that yes, that's what he is indeed feeling. It could last 2-3 months and is fluid and/or air surrounding his brain underneath the skull and outside his skull underneath his skin. She also let him know that his tumor was what they had thought it was, a cranial meningioma. It was benign (yay!!) and it was categorized as a level 1. If you ever plan to have a brain tumor, you want a level 1 because a level 5 is bad. So for now, he needs to continue his rest and take it easy until they go to SLC for his follow up appointments in 3 1/2 weeks with the surgeon, eye specialists, and an endocrinologist. ...if that all sounds eerily familiar, it's because I stole it from Starr's blog :)  He will be getting his 40 staples out today I think, and I'm pissy because I wanted to do it. I'm gruesome that way. But an 8 hour drive gets in the way, so their friend who works in the wound clinic (I think?) is going to do it. I want PICS!!!

Haha best shirt ever!  From Jeff and Deann Stratton

(he thinks it's funny, even though he's not smiling..maybe it's just a bad angle. Or could be the recent skull-opening...I dunno.)

 

 

I have more pics to post...will have to figure out my new Windows 8. Somehow I lost a few downloaded iPhone photos into no-man's land.

 

As many of you know, I do enjoy the spotlight. And Matt doesn't necessarily thrive on it like I do, so he'll probably be glad that I will be transitioning back into my sick little world here. 

Good news/bad news is that I lost 8 pounds over the past week and a half from stress and whatnot..it's bad because I'm supposed to start a fitness challenge at work on Monday and everyone else has been fattening up!!

On the homefront, Boy and Rod have been sick all week; how is it that I can have a cold and still go to New Orleans, find out about Matt, sit through 2 days of seminars, fly back, drive 4+ hours to SLC and "live" in the Neuro ICU for four days, get back, go to work...all the while these boys lie in bed and moan and sniffle? There certainly is an unfair advantage of having the XX chromosome. 

GIRL POWER!!

Chloe is adjusting to living the live without Charlie. I think she enjoys the spotlight like me. I went to Petco last night to get her another Kong (how DOES she destroy those??) and saw a teacup Yorkie on a leash SO DAMN CUUUTE!! awwwww

And thus a convo ensued between Rod and I:
Me: I want a Yorkie.
Him: It'll get broken. It will get out and get run over (our modus operandi)
Me: I want a cat
Him: you're allergic
Me: we'll get a hairless one
Him: they are over a thousand dollars. It will get out and get stolen.
Me: I want a yorkie
Him: it'll get broken
....see the vicious cycle? So for now we need to slow down on the guilt treats to our single dog-child. She is fat.



Tuesday

6:54 am: After a night of waking up every two hours, having three people try to"suck" your blood with only one success; Matt has finally run out of patience. The second phlebotomist was asked to stop and no one else was allowed near him. Matt requested to see his Dr before any more sticks would be tried. His surgeon came in and said that he's doing really well; however, he must have one more sodium test and it has to be clear before he could be discharged....today! We have had our hopes raised on other things during this little fun-fest, so everyone is being cautiously optimistic. Matt took a shower, is drinking lots of water to get those veins pumping, and they wrapped his arm in the electric blanket to warm it up (this has helped in the past).
Matt's friend Vince Longobardo flew in from FL last night to spend the first half of today sitting and watching Matt sleep, then flew back home at 1:00pm. Not a chatty day. Blood has been drawn but no word yet, and bandages are still there. He also needs to be released from physical therapy which hasn't been done yet.

10:00am: Bandages off! He was shocked to see the incision; at first I thought "oh how sad..." But Starr said that he thought it would look more gruesome.  I texted his buddies the picture, and Jeff Staples said he was a tough one now! I said "unless you have a bigger scar from your lightening strike, I think he's the tough champion!" and he said "oh he's the clear winner!"  haha I'd say...

 

 

Monday AM, POD#4

5:00am: Alarm goes off, I realize where I am and immediately I'm pissed because I can't be in SLC. It's going to be a sucky day.
9:44pm (this is a recap). Yep, I was right...it was a sucky day. FOR ME, not Matt. Let's recap the day, pieced together from Dad and Starr and their text updates (I am so grateful that they are keeping me posted; I feel so helpless and guilty that I'm not there for my baby bro.)

5:00am: pretty good night; pain subsided. Got blood drawn 3 times. Has gotten to the point where they say "thank you" when they're done, and all he can do is grunt (didn't I say the other day how nice and gracious he has been to them, even in pain??). Still on sodium watch (urine output quality, basically tells how the kidneys are doing, based on pituitary gland function). He became more chatty late at night.
6:00am: Docs came in. Bandages should come off today. Will slow down the IV fluids or even stop them. Will move into a regular room today. Still no word on discharge date.
9:59am: Pain level about a 6 (better than 9 when I left yesterday). Will continue to monitor input/output of fluids before being discharged from ICU. Such teasers, they are. Matt didn't eat any breakfast, but did drink a 12 oz juice, 8 oz milk, 8 oz apple juice, large powerade, jamba juice, and an 8 oz bottle of chocolate milk. ...jeez...thirsty much? ...they say this is normal.
10:30am: Had a shower and drank a bottle of Gatorade. (...so.... it just dawned on me that he has been clean-shaven all these days...).
Oh, and he's been labeled as a "hard stick". Just like his mommy (favorite). Meanwhile, on the non-sissy side of the family, Dad and I are easy pokes.   ....wait a second... o_O

He walked today; looks a lot better because the gas pains are down from yesterday. If he is still here in a few days they will take out the staples (WTH??? that was supposed to be MY job!!??).
Still dozing most of the day, but is more aware of the TV and people in the room. Seems to eat better at night. Breakfast apparently "doesn't smell good enough to eat", according to the looks he gives it. As long as mom and dad keep running out for Jamba Juice with protein, I'll feel better.

2:00pm: BP 119/80 respirations 18, pulse 80; respiratory therapist came. 
He was able to finish a third of his lunch and still managed to drink a large orange smoothie, 8 oz. chocolate milk, 8 oz. lemonade, and some water. The nurse also brought him in four more 12 oz. gatorades to drink. The Occupational Therapist was also in to make sure he could perform simple tasks before they would discharge him and he passed each one. His mom was giving the OT other things to do that he might come into contact with when we got home and he did not like that at all (haha wah. Do what your mom says!).  His tasks included: sitting on and getting off the toilet without help or assistance, picking up things from the floor, taking off and putting on his own socks, and simulating getting in and out of a bathtub. (...umm...I didn't see any bathtubs there.)
He is feeling the pain of the staples in his head now; got some pain meds for that.  (I'm still bummed I won't be there for the unveiling and then the staple-removing!).
Just got released from introductory physical therapy (haha sounds like kindergarten for walking); will need to climb stairs and the next higher levels of physical therapy still.

 with any luck, this part is ticking him off, because he KNOWS that he knows how to do this. Being ticked is a good sign.

hee hee okay, okay, it looks painful. Really. But in 3 years he'll look back on this and giggle.



Drinks a good volume; the output seems down. Dad has been feeding me details now and again, and said "but who really knows about the output thing, except the nurses that tally the records?" To which I said "I'm just going to ask Starr why she hasn't marked the urinal and sent pics."  haha She doesn't yet realize what she married into.
Brett C. (Carter?) came, and Ronald Stout and Rusty and Hilary Stewart were coming tonight.
This afternoon he moved into a regular room!! Well, it's called Acute Care Unit...not exactly an unattended room, but no longer in ICU. Which the sister side of me says "whew..baby steps of happiness!" and the medical side of me says "well shit. Now he won't get hourly attention and 24-hour supervision."
9:38pm: Dad sent me a video of his room, from the outside to inside, and a 360-degree turn. That man knows how I think, and what I need :)

Sunday PM, POD#3

12:50pm: Matt is tired. Has a lot of bloat pain still, probably the gas from anesthesia. I told him if he would walk around, this would help blood flow and help move the gas around. The gas meds they have given him haven't helped. I know he also has a lot of toxins in his body from anesthesia, that needs to expel from his system...he will feel a lot better once that happens. Lemon added to water will help, but although he is extremely thirsty he is really sick of water.

 

 

 

Here's some random pics:

 

Jinnefer, Starr, and Jen

Starr, in her "office" and "bed" in Matt's ICU room

 

 

 

 

 

 

 The entrance to Matt's ICU room

 

Dad, Tom, and Dave

 haha ok this is cute: Jeff Stratton doing his calculus homework at the nearest table in the waiting room. Yes, it's a child's table and chairs.

 Matt and Jeff Stratton

 

 

 

 This is the back of Matt's head. These are little...well, we'll call them Lilliputian stab wounds... from the halo-type device that held his skull/head in place for the surgery. It was to stabilize the head in case of a seizure during surgery.

 

 

 

 

1:09pm: Went on a small walk, but then had to lie down. The physical therapist came shortly after and wanted to take him on another walk to make sure all the major motor skills are present, to check off one more thing on the "to be discharged" list, but Matt is just too tired. She will come back tomorrow.
1:30pm: Tom and mom went down to the cafeteria. Jeff and Deann went to return movies to RedBox, and see if Pitch Perfect was available (taking 13 hours to download it on iTunes because of the open Wi-Fi here).
2:00pm: I am in the room with him while he sleeps. Housekeeping came in and cleaned.

3:00pm: Dave came in; we have been trying to get a picture with him and Matt, but Matt hasn't been up to it. Him and Dave know this website "chive" that promotes t-shirts that say "Keep calm and chive on" (it's a take on the popular "keep calm" logo you see everywhere) and people take pics in them all over, in all situations, then upload them to the website and I guess there are prizes...maybe just notoriety  haha. Matt and Dave decided before surgery that they would take a pic with Matt after surgery with the head bandaged, and upload it to win prizes (Dave: if I get any of this wrong, let me know!). Matt's only question was "you're not going to make me put it on, are you?"  haha no, we'll just lay it on top of you. So we did.

Matt's pain level is back up to 8-9; body pain and not headache. Nurse gave him Reglan (antinausea) and Fentanyl. Have been trying to give him oral Lortab, but he throws up everything, and doesn't want to eat. She said "I can't give this to you unless you've eaten; whaat did you eat?" He goes "I had that banana" and she says "umm yeah that was two hours ago; I'm not liking this"  haha (she was funny). The codeine in the Lortab will immediately make him hurl if he doesn't eat something. Talked him into eating a little applesauce so he could take the Lortab.
3:30:pm: I had to leave for St. George. Not happy at all about this, but I was told I had to go back to work because we are short a person. Also Royce and Tom are my only way home and they are leaving....kind of important  haha. I told mom she was in charge of writing down all of Matt's details; she looked at me wide-eyed and said "but.." so I looked at dad and said "you're in charge"  haha
7:30pm: Matt is no better, as far as the pain level goes; maybe a little worse. Mom and dad went to Jamba Juice and got him a protein shake and he trying to suck that down. He wanted nothing to do with the spaghetti and broccoli dinner (omg that's the last thing I want when I don't want to eat!).
8:30pm: I got to mom's house to pick up my van. Checked in on Amy and the animals; she has been staying at the house while mom and dad are gone. The dogs are happy, Elliot is quiet (that never happens!! He's the parrot), and Oliver (cat) has been upstairs. Everything doing well there. I updated Amy on when mom and dad might be home (Jan 31st), and if she needs to get back to her place or if there's a problem to call or text me. I'm closer than Idaho :)
Stopped off at the hospital in St George to see Rhonda and Todd; he looks a lot better than last time I saw him (they live in Vegas, so I don't see them every day). Less swelling. Dr Goodger was there when I came in, and was very happy at how much better Todd is doing. Will be discharged tomorrow around noon. Rhonda is head-over-teacups (as my mother-in-law would say...what are teacups? Not sure I want to see them..) about Todd's improvements.
10:00pm: I got home. No more details on Matt. Rod has been sick since I left (he never tells me these things...once he broke his arm at work, went to Instacare and had it fixed up, went back to work, then came home after work and told me. Another time he fell off the ladder and broke his heel. Nope I didn't know. So he either cares enough about me to not worry me, or he's afraid I'm going to chew him out for getting hurt....hmmmm).
9:45pm: Mom and dad headed back to the hotel.

Sunday AM, POD#3

8:00am: Arrived at the hospital. Starr stayed with him last night, and mom went in to see him when we got here. I haven't been in yet; Starr says he is eating breakfast of pancakes and bacon, with apple juice and milk (YAY), but doesn't want to finish until he gets his chocolate milk (someone's getting cranky... To me, it means that being here is getting to him, and he's doing better enough to BE cranky. I'm good with that. Of course, I'm not his wife!). He had his milk and apple juice already, and then ordered chocolate milk. Nurse said he is consuming and outputting plenty of fluids; Matt is sick of water and doesn't want to drink any more of the stuff. He's good with ginger ale and other liquids though. When we left late last night, he wanted a Coke. The rule had been "no caffeine" on the floor, but he is far enough along that the nurse ok'd it.
8:30am: Starr left to go take a shower. Matt is still eating. Mom came out so he could have some private time. Dad or I will go in next. Still has a limit of two visitors at a time.
9:25am: I just went in; he is sleepy but answered my questions. I asked if he was sick being here, or if he just wants to be home; he said "I just want to be in a different room". He is so polite to the nurses; even went tired and cranky he says "please" and "thank you".  The nurse was giving him IV Reglan (for nausea); I asked if he was still nauseated, and he mumbled. He had eaten his whole breakfast, then it all came back up. He now has his own little ice bucket for his drinks (I didn't see any chocolate milk...?). States his head pain is at level 5 now. 

These pics are all out of the order in which I wanted, but we'll start here. This is the back half of his room in ICU, and mom is sitting on the couch on which Starr sleeps:

 This is the hallway in NCCU coming to his room near the end on the right:

 This is the view when you first walk in his room:

 These are the supply trays...only interesting to a few of us :)

 He is wearing the typical plastic hospital bracelet, and with every blood sample they take, they have this gadget that imprints a label to affix to the vial.

 He doesn't want any more water, and they brought him his own little "cooler" for drinks.

 This is his front door in the hallway...you can see he is lying there, trying to sleep.

 

 



11:15am: Another round of meds, since the last ones came back up with breakfast. Got Lortab and Zofran.

11:30am: He is ready for a shower. Mom asked him if he wanted to sleep or shower, and he said "both". The physical therapist came and in wanted him to get up and walk around, but he chose shower first.

He isn't out of "DI watch" yet (keeping an eye on the urine quality), and even if he was moved out of ICU yesterday they would have brought him back today because of that. He will still have a 24-hour watch on him before discharge, whether he is in ICU or a regular room, so there's no rush to get him out of ICU right now. Maybe if he is doing "stellar" he may get out of the hospital on Tuesday. He is getting blood drawn now and is not a happy camper about it. Could be the repeat attempts at a draw...? They are warming his arm to see if this will help get the vein.

He decided to get the catheter out since it will help him to move around a little better and maybe improve things quicker, so that was just done. He's not all that excited to be up and around though. Probably more pain. Anything that raises the blood pressure in the head can cause pain, and being ambulatory after being in bed for four days can cause a shift in intracranial pressure. Even if it's mostly subjective, who blames him??

12:00pm: Jeff and Deann are here, so I went with them down to the cafeteria. Pudding and chai tea! We also bought a thing of choco moo juice for Matt :) Tried to watch the downloaded "Pitch Perfect" on my laptop, but apparently it takes like 333 hours to download on this wireless service!  ugh. So we are left to entertain ourselves, which is a big DUH, since we're pretty good at that anyway. Topics have ranged from peeing when you're drunk, to gay men vs lesbians making out. Starr is missing out!

Royce and Tom just showed up. I'm sure the topics won't veer far from here...

Saturday late PM PO#2

6:00pm: He finally ate some food! This was my concern today; I can be quite the naggy sister. I kept saying "I wish you could eat this roll. I wish you could eat more crackers...anything to calm your nausea". So I'm feeling better. His stomach still hurts a bit (gas from anesthesia maybe? I dunno), and is still sleepy. Had a visitor today, Garn Mc Neil, friend from SLC. He stayed and talked for awhile. Still waiting for the next available room to move out of ICU.

 While Matt slept, we busied ourselves with other things. Dad is actually playing on the computer here, and mom paid a couple bills.

Deann and Jeff Stratton were awesome enough to hang out with us most of the day...I loved it. They are my adopted sis and bro, and they are fun to have around :) Here, they are each holding an iPad and were giggling. I'm not sure what is going on here. Kids pictures? Maybe they are reading Starr's and my blogs....

 



7:00pm: Dad had been in to visit, and came back out to report that he had gotten another Heparin shot. "ANOTHER?" I say..."I didn't know he had any?". Not a panic, other than the fact that I am trying to collect all info, and this tidbit slipped by me. The nurse said this is normal protocol after brain surgery, to prevent clots. Good. Starr thinks this may be his 4th Heparin shot. 
9:00pm: Took more meds: anti-seizure, anti-nausea, and Lortab, per dad who was in there. States his pain level is about 5-6 now, which is WAY better than the 9-10 that it has been the past 3 days. He is having normal...umm...."bathroom habits" now, so that's good. Sorry Matt. You won't find that in Starr's blog I'm sure. But I'm the big sister. 
As soon as there is an available room out of ICU, he will move. They assume this will be tomorrow. Then he will probably go home (if everything goes well) Monday or Tuesday, and Mom and Dad will follow them home.
We have been seeing several armed guards all day, in and out of the ICU...one of the patients is either an inmate or in serious trouble I guess.
There are 22 beds in the NCCU here, and it's mostly full. He is in the 2nd to last room at the end of the hall. Why is this interesting? It will be, to Matt when he can read all this. He is a detail whore like dad and I. Drives mom crazy, because we will count the seats in an auditorium and multiply the approx. seat cost (varies depending on the seat location), minus the empty seats and overhead/staff, and determine what the venue made for that event. Mom just sits there and rolls her eyes.  lol
During the evening, I got a frantic phone call from my bestie (Rhonda), who lives in Vegas but her hubby has been in the St George hospital for a couple days because his kidneys are shutting down from complications from diabetes. She had been with him, but had to go back to Vegas for a day for her son's Eagle project with the intent of coming back today. Todd's daughter Ashalee was with him in the room when his tongue went numb and he couldn't talk. They whisked him away for a CT scan to rule out a stroke (common in late-stage diabetics). Rhonda asked me the symptoms of a stroke, and I told her, but that it could be just a reaction to one of the many meds they are giving him and that even if it IS a stroke that he is in the right place. She was going to drive back to St George immediately, which made me nervous because a frantic driver is a dangerous thing. I asked her to breathe, call her bishop, and don't leave until he can talk with her. (I knew she would leave; there's no sense telling her not to. She is a head-strong woman!) I texted Kenz (her daughter in St George) to see how things were, and to let me know when Rhonda gets there. Turns out no stroke (YAY!), just a reaction to one of the meds; was given Benadryl and he is doing much better. Good thing Ash (daughter) was there to see this when she did :)
Saw a news report that early Sat AM a boulder fell off Foremaster Ridge (in St George) and slammed into a house, pinning the woman inside. She has a broken jaw and sternum, and has a gash on her leg. Turns out this is one of my friends also. Will visit her when I get back; she will be in the same hospital as Todd.
        This year sucks.

Saturday PM, POD#2

2:00pm: Jeff and Deann Stratton are here, as well as Dave Branham and Tom & Royce Tait. Deann isn't into needles/blood/surgery/hospital-type stuff, so she walked in the room and kissed his forehead, then waltzed right back out! Matt held up a conversation with Dave a little (he'll be back tomorrow), and Jeff a little more. His friend from Ameriflight in SLC came (Simon Rush?) and had a chat. Matt's still sleepy and in-and-out today, so this was nice to see him talking a little.
2:30pm: He is ready for a shower; they have removed most of his IVs now so this is possible. I asked him if he would rather have male or female nurses, and he said "I'll do it myself". I said "oh no, that's not going to happen. Even if you're in a chair, you must be assisted. How about Starr? Will you let her help?" He didn't say anything, so I took that as a yes and told Starr she gets to be in charge of that since I would do it, but he would be embarrassed as hell.
2:50pm: I just got a text from her wondering if I wanted to do pics of the shower scene (I am documenting ALL the details so far) and my reply was "I would, but the whole penis thing might just upset both of us!" So sorry, folks...no private photos :)
3:30 pm: Starr is back from the shower; it was just him and her and he feels a lot better now. Haven't gone back in there yet because he needs to rest. He has gotten more headache pain every time he moves around so the last thing he needs is visitors.
It's weird seeing him like this. He's the big strong teddy bear...

Saturday AM, POD#2

8:00am we arrived at the hospital. Starr went in and Matt was asleep. She let him sleep..
9:30am: He is awake but more sleepy than yesterday. He had some vomiting during the night, but not so much that there would have been intracranial pressure (WHEW). He is cranky, and not as chatty. This doesn't bode well for his scheduled friend/family visitors for the day (Royce Tom, Dave and Cortney, Jeff and Deann are all supposed to be here today). The nurses said he had a good night, but he says he didn't sleep well. We think it's because he is just more aware of things now. He has continued to pass all the requisite questions (person, place, time). Took his morning meds, and trying to eat breakfast  (scrambled eggs, hash browns, sausage links, apple juice and maybe toast). The ART line came out; this is one more step toward the goal of showering :)
10:25 am: Starr left for a brief walk, and Matt was still sleeping. I was perusing Pinterest in his room when the nutritionist came in. She asked if he had any food allergies, and if he had any food likes/dislikes. I thought for a second and said "well, we were raised on mac & cheese and bologna; if you feed him like a 10-year-old, we should be fine".  She laughed and said "we can do that!" I said "just no weird things like arugula and stuff, and he will be happy". She said lunch was chef salad with turkey and ham and cheese, and baked potato soup. I told Starr later and she said "oh good. He likes those".  Haha  then it got me thinking...I would be a nightmare for anyone as a patient. What's left after knocking out dairy, spice, salt, citric, and sugar? lol
I talked to Royce; she and Tom were just finishing breakfast (this was earlier) and were going to head over. She had left her phone in the truck, and the iPad wasn't connecting where they were, Tom doesn't have texting on his phone (doesn't like technology attachment like the rest of us do!), and she was feeling a little isolated.  haha... Dave has been a little under the weather so him and Royce may or may not go shooting today as planned. Dave texted me a little bit ago; he is heading up so I gave him directions.
Mom has been reading books on her iPad (thanks Ry!!), and we have ventured her out onto Pinterest and our blogs...she might just get as electronically attached as me and Starr and Royce. What have we created? :) I remember when she hadn't used texting yet, and she would wonder aloud why we don't just pick up the phone and CALL the person, rather than text back-and-forth?? And now look at her...dad likes to give her crap by calling her out on her texting stats for the month  hee hee

Friday night; after MRI

3:30: Eric visited. He is a boss of Matt's at Ameriflight. They chatted for quite some time.
3:45: 30 minute warning for the MRI. Nurse came in and hooked him to the portable monitor (BP, pulse, O2 sats, etc).
4:00: He is peeing 500cc, when a normal female (why this reference? I don't know) would pee 20-30cc. The body and brain have not readjusted to what it's supposed to do yet; this is somewhat normal after removal of a tumor at the pituitary.
4:30: Matt taken for the MRI.
5:51: Matt back in the room from MRI. It will be at least an hour for the results, per Matt. But he was obviously given something for the MRI, so we'll see how accurate he is.  haha..  He is trying to eat dinner (chicken, mashed potatoes, berry cobbler, fennel/arugula salad).



He is very sleepy and has a headache from the transfer and travel to the Imaging department. Bumps hurt. He asked that the door be closed, because the hallway was loud. I noticed he has remainder of betadine on his RT upper thigh and some markings, and it's also shaven. He didn't know what it was; it appears to be the prepped area of when they were going to take a graft if needed. It's intact, so obviously they didn't take the graft. But now I remember the Dr told us "no graft" when Matt first came out of surgery.



6:26: Matt asked when he could shower; the nurse said he cannot at least until the ART line is removed (maybe tomorrow, but we'll see when the Dr reports).
7:00 pm: Just got back from Matt. Dr Eskandari (5th yr resident; was in the surgery) came in and answered my questions. Rather gracefully, I might add. I can be very quizzy.

• MRI was "pristine"--no tumor, all the remaining parts are intact and unharmed. The radiologist will need to review it in more detail still, but he was pretty confident in the findings.
• As long as the fluid status/urine output is normal, he can leave ICU tomorrow. He will likely be here at the hospital for at least a couple more days. Right now he is still wasting water and keeping salt in the system.
• He has a few titanium plates, and "maybe 8 screws?" in his skull. They will stay there forever. Staples in his scalp will need to be removed in 7-10 days. (by me? why, sure! I removed dad's when he had HIS tumor removed, and he didn't complain. Much.)
• Bandages come off on POD#3 (postop day 3. There's my shorthand again, Jamie!), and he can shower on POD#5. Cannot soak the wound site (hot tub, bath) for 4 weeks.
• Return to Moran Eye Center in 4 wks for full eye exam and then right after (same day) at UofU Hospital for follow up.

7:25pm: A strange man just came in the waiting area and asked for someone to witness and sign a medical directive, and it cannot be family/friend/UofU staff. So look at me, being all useful! His elderly father had a stroke, and needs rehab to regain useful motor function. Poor guy...he is frustrated because he can't sign his name like he could yesterday even though his mind is telling him to...and the son is frustrated and saddened. Turns out he lived in my area (yes, he has my address...new stalker! haha) about 10 years ago. Ran the Twin Lakes golf course from 1985-1995. Yes I can get details from anyone.

Post Op Friday afternoon

This is our command center. We kind of took over the NCCU waiting area, across the hall from the ICU (he is room 3321). We have a total of 5 laptops, one iPad, and several phones. Starr has been in charge of her blog, her phone, Matt's phone, and all the visitors.

So far we had Matt Hinkey (sp?), Clark, Robin, and then of course Jamie came before surgery.

Matt has been checked on by the nurses on an hourly basis, and today was "upped" in status which means he only gets checked every 2 hours now. This makes him happy, because every hour of the hour they wake him up, ask his name and where he is and why...he is understandably sick of this! Still waiting for the MRI. Endocrinologist came in and needed some info/records from Idaho Falls that he didn't get yet; he will check back later. They told us that Matt will be in ICU for another 1-2 days still. Doing much better...I am in the room with him now, and they just took away his lunch tray. He ate a little food, and let his tiny little Haagen Daaz ice cream melt, so they brought him a raspberry sherbet. These nurses like him :) Is drinking water regularly, and has good output (although kind of clear, so they are monitoring sodium levels closely).  ....I'm sure he will be super excited to read this.

Post Op day 1 (Friday)

10:00 am: I went in ICU and talked to Matt. The surgeon and the physical therapist had been in this AM. He needs to walk and sit up to make sure everything moves properly. He says he gets a little more of a headache when he does that, but knows this is normal.
Had labs drawn while I was in there; blood sugar is 129 and they will check his protein levels every few hours or so. Apparently he has had to pee every hour for the past few weeks, and this is because the tumor was pressing on (?) which controls the sodium/kidneys and the body has been confused on where the sodium is in the body (inside vs outside an area? I don't know...ask me about the eyes...I don't do kidneys  haha). This will hopefully level out soon, now that the tumor is out. He still has the catheter in, isn't real excited to have it taken out because of the removal (ouch) and he knows he will have to get up to pee, and he gets worse headaches with standing. The nurse says this is ok for a while, but should look forward to having it out today. They will wait until after the postop MRI (should be anytime). Jinnefer (Starr's cousin) and I were reminiscing about previous cath removals after childbirth years ago, and that didn't alleviate any of his concerns about pain hahaha sorry Matt. Love you.

Some random shots of the day. Good day. He walked, and was sitting up for awhile to eat lunch. 



I had a great convo with him today; asked him lots of questions about yesterday, the pre op, waking up, this AM, etc. He remembers everything he needs to, which is fantastic. He remembers when the anesthesiologist drove his bed away (from us in preop, to surgery yesterday) that he kept running into walls. The anesth said "jeez we need a new bed for you! haha". Then he went into the OR, lined up next to the surgical bed and climbed over (scooted over) to it with a little help. Then he doesn't remember anything else. That's good; he was worried about that yesterday. The nurse yesterday said it took him a little longer to go under because he's a big guy. Came out of it ok. He remembers waking up. Doesn't really have a sore throat from the intubation, but says he felt like he had to cough up or clear up his throat a lot. He was doing that last night. It scared Starr and I because he would be lying there under the oxygen mask, drifting off (breathing labored because of pain) and all of a sudden we thought he was choking. Yikes we were on high alert! I can't remember if I posted this part, but they did a shift change last night when I was with him and because they were updating the new shift with patient info and they wouldn't let me leave til that was all done, so Starr and were with him for over an hour. When I was able to switch out (he can only have 2 people in there at a time, so we are switching out every once in a while), mom called me a hog  hahaha
Back to today...he is on steroids to reduce any inflammation (there's bound to be some of that; they dug around in his brain for crying out loud!), got a dose of IV antibiotics when I was in there, and he is on Lortab every 6 hours for the pain. They don't want him on IV or injection pain meds because they want him to be able to understand and tolerate the pain, because when he goes home he can't take Fentanyl with him :)
We talked about his flying status; this will temporarily hold his status until further notice.
He is on anti-seizure meds as a precaution; seizures are a concern after brain surgery, so this is normal. The nurse says he may be on these for a few days or even a couple weeks.

Post Op Day 1 Friday morning

got to the hospital a few minutes ago. Earlier around 9:00 they brought him breakfast but he was nauseated and didn't want to eat. Less pain today so far. They ordered an MRI for sometime today, and started him on anti-seizure meds as a precaution. It is common for PO brain surgery patients to experience seizures, but he hasn't had any and they wanted to avoid them.

 

When we set up our row of laptops in the NCCU (neuroscience critical care unit) waiting area, all of a sudden we saw him walking by! Two nurses are escorting him down the hall for a walk. Looks good. I took pictures on my camera, which of course I don't have the cords for, so I'll have to post when I get home. YAY!!

Thursday, Post Op

6:30 pm: more Fentanyl. Pulse 67 BP 146/85 O2 sats 99-100%, respiration rate 17. The BP is measured by a catheter into an artery in his wrist. Got some Zofran into the IV @ 6:30 because of nausea, but 10 minutes later was still nauseated so had to have an intramuscular injection of Tygan, which is stronger.
7:00: His right jaw is swollen, which is to be expected. They either went through the bone or the muscle to get to where they needed (didn't hear the details on that). Has had some ice chips, but isn't ready for food yet. Had some blood taken. He was obviously bugged with all the chatter in the room (surprisingly I wasn't in there at the time) because he said "be here, but shut up!". So the whispering began. When the RN was checking the tube on his catheter, he said "could you stop jacking that around?"  hahaha ...and was wondering when it was going to be taken out because it was like "riding a horse". Yep he is better. He asked to see pictures of postop, so we showed him what I had on my phone and he was disappointed it wasn't worse-looking. Of course, he's still bandaged; we don't know what the staples look like!

 

 

 

 

 

 

 

 

 

 

 

 

Thursday...Surgery Day

Getting some last minute texting in.

 Sexy!

"Y" for "yes"...the surgeon marked it in front of Starr for verification that this is where they are beginning the incision.

 

1:30 pm: started the actual surgery.

First visitors (ok, besides Jamie and Julie last night): Brit and her friend, whom Matt had never met. Because Matt had joked about not having a memory after surgery (hey cut us some slack; we handle stress by joking and avoiding emotion!), we were going to tell him this guy was his Best Man at the wedding. haha

3:30 pm: got a phone call from the OR nurse; she said that he is "doing fine" (not good??) and is tolerating anesthesia well, but they haven't gotten to the tumor. Will update in a couple hours.
4:40 pm: update just got done with surgery.
5:08 pm: wheeled out. No drain, "got all of it", will check vision in a few hours, no grafts needed, he is awake and oriented.

 

5:45 pm: saw Matt in the ICU. Per Lucas (the ICU RN) everything went smoothly, he has a full visual field (confrontation), can eat when ready, dose of Fentanyl at 5:51pm (can give about every hour because it burns off quickly), can take Lortab when he is ready, is a 9 on a pain scale of 0-10, is oriented and answered "SLC, UofU Hospital, January, Matt" when asked the questions, wiggled toes on command, answered with a thumbs-up to a question, blood pressure of 147/88 and pulse 68, catheter can come out when he is alert enough (I think he is--he asked if it was in, and pretty soon....lol), and no worries about over-stimulation. Which is good, because basically...well you know me.

Justin Beiber, New Orleans, and the Brain Tumor

The year started out fairly boring...but then on January 5th I went to a Justin Bieber concert in SLC with Starr, Sarah and Scotlyn! It was a surprise for Scotlyn--she thought we were all going out for "big girls' dinner"--the concert was Matt's idea, I hear. It was very fun--she was so excited she threw up before the concert! So many 10-14 yr old girls and their mothers...the music they played between sets was old-school Michael Jackson; they certainly knew what they were doing with us old fogies  haha

On Jan 11-14 I went to a meeting in New Orleans with Dr. Richens, Kelly, and Dr. Gibb. It was a Medflow meeting, which is our EMR at work (Richens Eye Center). I ate raw oysters with horseradish whip, fois gras (fatty duck liver), and crab fingers!  ...so outside of my mac & cheese box--I was so adventurous!

During the flight to New Orleans that Friday, I got a text from mom that said to call her ASAP. Because we were taxiing the runway and had to turn off phones, I made her text me what was happening. Matt had been confused the night before, so Starr took him to the ER that next day and found that he had a pituitary tumor that was pressing against the optic chiasm and elsewhere, so it needed to be excised. Surgery was imminent, but wouldn't be until the following Monday or Tuesday. I decided not to tell my fellow travelers, since they would just be preoccupied with me and I couldn't leave to do anything anyway. And I figured once I landed back in Vegas, I could just reboard and fly to SLC to be there for the surgery. Turns out the surgery was to be on Thursday so I had time.

Wednesday the 16th mom and dad and I drove to SLC to be there with Matt and Starr; Jamie and his wife drove up to see Matt and have dinner before he has surgery. It was a pretty fun mood--Matt kept telling Jamie that he needed to hug him because "I have cancer--give me a hug" (it's not cancer...but he sure is using it  haha). I told Matt I was going to make him a vinyl sticker for his car that says that if he wasn't careful :) 

The night before the surgery, in the hotel. Kickin' it, Mikkelson-style.

 His last food before midnight...chocolate cake.

Matt told mom that the tumor was because of cells that were leftover when he was born, so it was her fault; she was shocked and said "It's my fault??" to which I said "of course you gave them to him--he's the favorite! You gave him a tumor and didn't give me anything!"  haha that's where the favorite thing comes in...it's a family joke, but it's true :) These are cells that everyone is born with; it was just fun to mess with her.

Thursday, January 17:
Today is surgery day...checked in at the University of Utah Neurosciences dept at the hospital at 9:15am. It is now 11:30 and should be taken back anytime now. Jinnefer (Starr's cousin from CA) and I and Starr were with him a while ago, and now Mom and Dad are there in preop.

When we drove into the parking structure today, the concrete beams were SO LOW that we kept scraping the top of the truck cap with them  haha it was "schshc..schsch...shcshhcs" over and over. Good thing dad and I thought it was pretty funny.

12 noon: just talked to the anesthesiologist ...this tumor is pretty rare, and is attached to "parts" (that came from dad before I got in there, so I don't know which parts and how much), so they might leave some of the tumor behind as to not cause further damage by trying to remove it all.
This is normal, and is the safest bet. I see patients before and after this surgery quite often, and we do studies on pituitary tumors regularly because of the location and impact in ophthalmology.

They will make an incision on the RT temple up to the crown, remove that portion of skull, and manipulate brain tissue to get to the tumor. Because of the rarity, there will be only senior residents in there (vs 1st year), and they will likely be videotaping in 3D. Whether we ever get to see it or not is TBD, because of liability and such. It will take longer than the 4 hours, because of the complexity and rarity of the tumor. He shouldn't have much pain after, just the incision sites usually. He will have a drain for potential blood as well as fluids, so that they don't cause pressure within the brain. He will be having eye exams soon after postop (in my world, it's to rule out papilledema). He will have some jaw pain as well because they are cutting through the jaw bone at the temple. Matt was more concerned about if any of the IVs or the catheter will hurt, and if he needs to take off his underwear :)

Right now, we have Jinnefer, Starr, me and mom all lined up doing our "blogs". Three of us are on laptops, one is writing in a notepad....guess which one?